Summery:
- The Procardis project is an example of genomics research, where information from the genome – from across the whole spread of DNA in each individual – is being examined with the aim of improving our understanding of disease. In Procardis: samples were collected from cases and controls, and also from small family groups. Procardis recruits from European countries, and determine the recruits by age, blood and history of disease. They are all volunteers, and do not get the results other than info about their blood by doing this study. It is considered a Genome-Wide Association study. It takes the human genome and studies 1 million out of 3 billion snips of it to determine if different individuals could have differences in susceptibility to diseases. However, in order to keep research going smooth, researchers share their research for increased efficiency in the research.
Question: Should people let their DNA be used for research when there is no chance that they will have a reward for their participation?
I feel as long as the individual understands the terms of their role in allowing their DNA be used scientifically then it is perfectly fine with allowing people to donate their DNA with no expectations of reward in the end. I feel there are plenty of willing individuals who wold allow their DNA to be used without reward. If the DNA proves to be useful and generate a revenue that the individual isn't entitled the compensations because they donated understanding the possibilities and did it simply because they thought it might help. Simply because it did help does not mean that the person who's DNA it is deserves money for their own donation.
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